Enjoying life with the diagnosis of ALS

I fight for every step


The “Amyotrophic Lateral Sclerosis Functional Rating Scale” can be used to determine the status and document the progression of the disease.


What is measured is the maximum breath, the so-called peak expiratory flow - i.e. how hard you can breathe out.

VC max

Maximum vital capacity is the highest measured amount of air that one can inhale or exhale.

Last Updates


Relaunch of my website with a refreshed appearance - including mobile compatibility.

My web host is going out of business at the end of May. In the last few months I have rebuilt and expanded the website. Since I'm currently doing this without support, I didn't have enough time to finish everything to the current status. I'm working on getting to the current status.


Do you want to support my daughter and me?