Enjoying life with the diagnosis of ALS
I fight for every step
ALS-FRS
The “Amyotrophic Lateral Sclerosis Functional Rating Scale” can be used to determine the status and document the progression of the disease.
PEF
What is measured is the maximum breath, the so-called peak expiratory flow - i.e. how hard you can breathe out.
VC max
Maximum vital capacity is the highest measured amount of air that one can inhale or exhale.
Last Updates
29.05.2024
Relaunch of my website with a refreshed appearance - including mobile compatibility.
My web host is going out of business at the end of May. In the last few months I have rebuilt and expanded the website. Since I'm currently doing this without support, I didn't have enough time to finish everything to the current status. I'm working on getting to the current status.
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Do you want to support my daughter and me?
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My name is Dennis Schneider. I was diagnosed with ALS at the age of 43, which gave my life a new direction. I have an incurable disease, but I am not terminally ill. Since the diagnosis I have constantly adapted my life to the new conditions and have always remained active. I didn't let the disease control me. After careful consideration, my wife and I decided to have a baby.
On our way as a family we have learned, that the amount of information about ALS is huge. It was incredibly difficult for us to figure out what was relevant to us from this amount of information, even more to find encouraging reports. This gave me the motivation to create a platform on which you can get information in a positive atmosphere. A wide variety of subject areas, such as clinical picture, forms of therapy, working with the assistance model (subject of the Swiss Disability insurance), active lifestyle, travel, club activities and much more are listed here. We are also happy to pass on our tips and tricks that we have used in the past in order to enjoy an active life together.