Enjoying life with the diagnosis of ALS

I fight for every step

AI-generated from picture

On our way as a family we have learned, that the amount of information about ALS is huge. It was incredibly difficult for us to figure out what was relevant to us from this amount of information, even more to find encouraging reports. This gave me the motivation to create a platform on which you can get information in a positive atmosphere. A wide variety of subject areas, such as clinical picture, forms of therapy, working with the assistance model (subject of the Swiss Disability insurance), active lifestyle, travel, club activities and much more are listed here. We are also happy to pass on our tips and tricks that we have used in the past in order to enjoy an active life together.


ALS-FRS

The “Amyotrophic Lateral Sclerosis Functional Rating Scale” can be used to determine the status and document the progression of the disease.

pCO2

The pCO2 reflects the amount of carbon dioxide dissolved in the arterial blood. Since carbon dioxide is primarily excreted through the lungs by exhalation, the pCO2 value is an important indicator of lung function.

(Normal for men 35 – 46 mmHg)

VC max

Maximum vital capacity is the highest measured amount of air that one can inhale or exhale.

(Normal 4,5 bis 5 L)

Last Updates

You have just received the diagnosis and are asking yourself 

"What now?"

My website is intended to support your first steps.

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