Enjoying life with the diagnosis of ALS
I fight for every step
AI-generated from picture
On our way as a family we have learned, that the amount of information about ALS is huge. It was incredibly difficult for us to figure out what was relevant to us from this amount of information, even more to find encouraging reports. This gave me the motivation to create a platform on which you can get information in a positive atmosphere. A wide variety of subject areas, such as clinical picture, forms of therapy, working with the assistance model (subject of the Swiss Disability insurance), active lifestyle, travel, club activities and much more are listed here. We are also happy to pass on our tips and tricks that we have used in the past in order to enjoy an active life together.
ALS-FRS
The “Amyotrophic Lateral Sclerosis Functional Rating Scale” can be used to determine the status and document the progression of the disease.
pCO2
The pCO2 reflects the amount of carbon dioxide dissolved in the arterial blood. Since carbon dioxide is primarily excreted through the lungs by exhalation, the pCO2 value is an important indicator of lung function.
(Normal for men 35 – 46 mmHg)
VC max
Maximum vital capacity is the highest measured amount of air that one can inhale or exhale.
(Normal 4,5 bis 5 L)
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My name is Dennis Schneider. I was diagnosed with ALS at the age of 43, which gave my life a new direction. I have an incurable disease, but I am not terminally ill. Since the diagnosis I have constantly adapted my life to the new conditions and have always remained active. I didn't let the disease control me. After careful consideration, my wife and I decided to have a baby.